Research
Links
The
links to web sites below are monitored and checked on a regular
basis by the International Alliance of ALS/MND Associations.
Please advise the Alliance at info@alsmndalliance.org
if any link is inoperable.
The
Alliance has not evaluated the sites for ease of use, coverage
of research, or the information contained on sites mentioned
below. Some sites may only report on research undertaken by
their institution, while other sites may only report on research
funded by their organization. The sites have been included
in this page because members of the International Alliance
have recommended that they be included. The Alliance takes
no responsibility for the information provided in web sites
accessed from this page.
The
Alliance recommends that people who are interested in ALS/MND
and wish to receive updates on news about ALS/MND and research
should register to receive the Newsletter at www.alsmndalliance.org.
This is an opt-in/opt-out site that requires you to register
an email address and respond to an email automatically sent
by the Alliance to ensure that you wish to receive messages
from the Alliance. Information held by this news facility
compiles with Privacy Legislation.
Research
Web Links
http://www.fundela.info
(Spanish)
Home
page of FUNDELA, a member of the International Alliance, who
report on research. All information is in the Spanish language.
http://www.alscenter.org/
Robert
Packard Centre for ALS Research. It reports on research conducted
at or by the Robert Packard Centre.
http://www.alsa.org/research/news.cfm
Research
home page for the ALS Association.
http://www.als.net/default.asp
Home
page for ALS Therapy Development Foundation.
http://www.lesturnerals.org/research.htm
Research
page for the Les Turner ALS Foundation.
http://www.ninds.nih.gov/disorders/amyotrophiclateralsclerosis/detail_amyotrophiclateralsclerosis.htm
Home
page of the National Institute of Neurological Disorders and
Stroke. NINDS is the funding arm of the US Government.
http://www.mndcentre.org.uk/Research/RschFront.html
Research
page of the King’s MND Care and Research Centre, King’s
College, London.
http://www.wfnals.org/clinics
World
Federation of Neurology list of ALS/MND clinics
http://www4.ncbi.nlm.nih.gov/entrez/query.fcgi
The
National Library of Medicine provides a search facility on
medical publications, including PubMed
http://www.clinicaltrials.gov/ct
This
site proved a search facility on clinical trials being conducted
in the US. This is a service of the National Institute of
Health and provides regularly updated information about federally
and privately supported clinical research in human volunteers
http://www.mdausa.org/
Home
page of the Muscular Dystrophy Association in the US.
http://www.wfneurology.org/
Home
page of the World Federation of Neurology
http://adams.mgh.harvard.edu/cagn/als.htm
Home
page of the Massachusetts General Hospital Institute for Neurodegenerative
Disease
http://hopecenter.wustl.edu/
Home
page of the Hope Center for Neurological Disorders based at
Washington University in St Louis
http://www.columbiaals.org/
Home
page of the Eleanor and Lou Gehrig MDA/ALS Research Centre
at the Neurological Institute of New York, Columbia University
http://www.als.ca/research
Research
page of the ALS Society of Canada
http://www.bcm.edu/research/
Home
page of the Baylor College of Medicine. Search on “ALS”
for research information.
http://www.nrr.nhs.uk
Home
page of the National Research Register, Dept of Health. The
National Research Register (NRR) is a database of ongoing
and recently completed research projects funded by, or of
interest to, the United Kingdom's National Health Service
(NHS)
http://www.neurogenetics.northwestern.edu/index.jsp
Home page of Neuromuscular Disorders Program Feinberg School
of Medicine Northwestern University.
http://www.miami-als.org/
The University of Miami ALS Clinical and Research Center.
http://neurology.med.miami.edu
University of Miami Department of Neurology.
http://www.israls.org/israls_english.htm
The Israel ALS organization. It can be accessed in English
or Hebrew.
http://living-with-als.org/
A Yahoo group were persons with ALS and caregivers can get
information, share problems and look for solutions.
(Back
to Top)
|
