Questions? Contact Kevin Packman at Kpack35050@aol.com or 786.286.6707.
There is now a children's book for kids who have a parent, grandparent or other family member with ALS. "My Dad Has ALS?" was written by kids, for kids and offers insight into the disease from a unique, young-person's perspective, and can help alleviate some of the fear and confusion that children in this situation may have. This is the only book of its kind, and 100% of the proceeds from its sale are donated to the ALS Recovery Fund. Teen authors and sisters, Rachel and Jennifer Silverman will be exhibiting the book at the Miami International Book Fair on November 19, but it can be purchased as well at "www.smile.amazon.com (by designating the ALSRF, Amazon will make an additional donation with each purchase).
Thank you so much to the ALS Recovery Fund and the ALS Center at University of Miami with out your grant we would not have been able to make changes to our bathroom so that I can
still be independent. - AR
My husband is 6’3”. Pushing him in a wheelchair is difficult. Our house has two steps at the entranceway. To get into our house my kids had built a ramp, which was always moving and
needed to be replaced each time it rained. With the grant from the ALS Recovery fund we were able to build a permanent ramp that he can even get himself up and down. Thank you so much!!! -
ALS is a horrible disease; it has taken away my independence and more. I am dependent for everything. It has affected everyone in the family. Thanks to the ALS Recovery fund grant,
Anna, the home healthcare worker comes a few hours to relieve my wife. - Thank you from the Garcia family.